NIDRR Rehabilitation Research & Training Center
in Neuromuscular Diseases (RRTC/ NMD)
Department of Physical Medicine & Rehabilitation
University of California Davis
What are some of the best science and medical information web sites for neuromuscular diseases?
The National Library of Medicine
The NLM manages the largest collection of medical information in the world. Browse this link to muscular dystrophy in their Medical Encyclopedia to get an idea of the wealth of information they offer.
Department of Health and Human Services, Centers for Disease Control and Prevention
The Centers for Disease Control and Prevention web site has considerable information on Duchenne and Becker muscular dystrophy (DBMD). There is a wide range of information from the genetics of DBMD to resource information for those affected by the disease.
MDA (The Muscular Dystrophy Association)
The Muscular Dystrophy Association is a superior source for news and information about neuromuscular diseases, MDA research, and services for adults and children with neuromuscular diseases and their families. You'll find a searchable database of the 230 MDA clinics and numerous publications, including MDA's Quest Magazine and The ALS Newsletter. Also, there's a way to Ask the Experts at MDA about current research developments and medical management of neuromuscular conditions.
NARIC (National Rehabilitation Information Center)
The staff of the National Rehabilitation Information Center (NARIC) has collected and disseminated the results of federally funded research projects. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. NARIC offers innovative information products online. These resources include: five searchable databases of research, organizations, documents, and Internet pages; an interactive calendar of disability and rehabilitation events around the world; monthly features; and a current awareness service highlighting the most recent additions to our collection.
National Institutes of Health is a superior source of information about neuromuscular disease research and current findings. Search the NIH web site using keywords like "neuromuscular disease" to see abstracts of U.S. research projects and news of research advances.
NORD (National Organization for Rare Disorders)
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
OMIMT (Online Mendelian Inheritance in Man)
This database is a catalog of human genes and genetic disorders, developed for the World Wide Web by NCBI, the National Center for Biotechnology Information. The database contains textual information, pictures, and reference information. It also contains links to NCBI's Entrez database of MEDLINE articles and sequence information.
PubMed
PubMed, a service of the National Library of Medicine, provides access to over 11 million MEDLINE citations back to the mid-1960's and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.
