Funded By:
Julian: A Life with Duchenne Muscular Dystrophy (26:10)
Julian describes his early childhood, how the gradual loss of strength affected him, hobbies, friendships, and school issues. Through his art and poetry he conveys both his challenges and his strengths.
Julian: Daily Living and Respiratory Equipment (20:41)
Julian describes how he is assisted with bathing, dressing, mobility and access to community college. He demonstrates the effectiveness of pharyngeal breathing (“frog breathing”) and explains the use of his respiratory equipment.
Julian's Parents: Getting the Diagnosis (12:53)
Bonnie and Joe remember how they learned Julian had muscular dystrophy and how they coped with this news.
Julian’s Parents - Life Adjustments (24:27)
Bonnie and Joe describe how their family was affected, parenting choices they needed to make, and how they helped Julian succeed.
High-Quality (101mb)
Low-Quality (9.13mb)